Information about the Living with Dementia GroupBack upLiving Well with Dementia is a group programme that has been developed to help improve the quality of life of people who have a diagnosis of dementia.
The group meets once a week, over the course of 10 weeks. It provides an opportunity for people to meet others who are coming to terms with a diagnosis of dementia, as well as somewhere to learn strategies and tips for coping. The group is run jointly by Occupational Therapists and Assistant Psychologists from the Memory Assessment Service (MAS).
- Who is the group for?Back up
If you have been referred to the Memory Assessment Service (MAS) and have received a diagnosis of dementia, support from this group may be open to you. Please feel free to discuss any concerns or apprehensions you may have about joining the group by contacting the Assistant Psychologist or Occupational Therapist.
Memory Assessment Service: 03000 272 344
- What support is available for carers?Back up
A friend, or family member, is invited to attend the first and last Living Well with Dementia session with you. Where possible, Northamptonshire Carers or the Alzheimer's Society run a series of sessions alongside the Living Well with Dementia group. These are an informal place for carers to meet others in similar situations.
Topics include:
- Future planning
- Understanding changes in behaviour
- Contingency planning
- Looking after yourself
- What can I expect from the group?Back up
The aim of the group is to help people to talk about their dementia experiences, including any difficulties and how they impact upon everyday life. Being able to socialise and share experiences is an important aspect of the group.
We realise that it is often a difficult and emotional topic to discuss, so the group provides a relaxed and sensitive environment where everyone is supported.
We use a recovery focused approach which encourages people to adapt to the changes in their lives by learning new strategies and maintaining hope for the future.
Each group has between 8 to 10 members. The group takes place on the same day each week. Sessions last for 1.5 hours with refreshments available. Group members will be provided handouts from the session to discuss with partners and family. The overall aims of the group are:
Work together with families to help people to adjust to their diagnosis
Encourage people to feel empowered to make decisions about the present and future
Increase self-esteem and to develop a sense of meaning and purpose
Work with friends and families to find a way to manage problems and develop coping strategies
If you are interested in attending the group, please call the Memory Assessment Service (MAS) and an Occupational Therapist or Assistant Psychologist will contact you to arrange a pre-group meeting. The meeting involves a relaxed and informal chat, where you can ask any questions you might have about the group and address any concerns.Memory Assessment Service: 03000 272 344
Information about the Next Steps workshopsBack upReceiving a dementia diagnosis is often a difficult event, and it can take time for individuals and their families to come to terms with it. It is common to have trouble taking in and understanding all the information given at the point of diagnosis and people often say they need more time to absorb and process, before they can learn more. Likewise, as a dementia journey progresses the information needs of those diagnosed, as well as their families, can change.
Next Steps is a one-off education and information workshop.
The workshop is for those who have been newly diagnosed with dementia, and their families, and provides an opportunity to learn more about coping with the implications of their diagnosis and what support is available to them.
Getting accurate information and support can help explain what to expect and what may happen next, as well as empower those involved to make their own decisions.
These friendly and responsive sessions are tailored to meet your needs. They are flexible, allowing us to address the everyday practical queries and questions you may wish to ask. We aim to find problem-solving techniques and solutions to suit you and your family.The workshop provides:
- An opportunity to meet with staff from the NHS, and other locally available services, to learn information about dementia and the support available
- Advice and practical guidance on approaching difficult issues
- An opportunity to meet others with dementia and families in a similar situation
- Time to ask any questions you may have about dementia
- More understanding of the process of assessments and the decision making used to diagnose dementia
- An opportunity to share your experiences
- An individualised information resource pack to take home
The free session lasts around 2 hours, with tea and coffee provided. It is led by professionals in the Memory Assessment Service, including Community Psychiatric Nurses, Occupational Therapists, and Assistant Psychologists
The Memory Assessment Service regularly runs Next Steps Workshops. Some time after you or a family member receives a diagnosis of dementia, we will contact you and invite you to attend the workshop.
If you do not wish to be contacted about this workshop in the future, or if you have any further questions, or would like to join a group, please speak with the member of staff you are working with or get in touch.
What is mild cognitive impairment?Back upHaving a diagnosis of Mild Cognitive Impairment (MCI) means you are experiencing a level of cognitive decline (memory or thinking) which is higher than average for your age. However, the symptoms are not severe enough to interfere significantly with your daily life.
- What are the symptoms?Back up
A cognitive assessment will help highlight the strengths and weaknesses in your ability. You may or may not have weaknesses in the following areas:
- Memory - for example, forgetting recent events or repeating the same question
- Reasoning, planning or problem-solving - for example, struggling with thinking things through
- Attention - for example, being very easily distracted
- Language - for example, taking much longer than usual to find the right word for something
- Visual depth perception - for example, struggling to interpret an object in three dimensions, judging distances or navigating stairs
- Will my feelings be affected?Back up
Having symptoms of MCI may affect how you feel. For example, you may experience:
- Low mood or depression - your GP or Northamptonshire NHS Talking Therapies can offer assessment, advice or treatment. There are effective treatments for depression. Depression can affect your behaviours, so it is important to get this addressed.
- Feeling irritable or anxious - if you are feeling like this talk with people who you trust and consider speaking with your GP.
- You may also feel a loss of enthusiasm or enjoyment in the things that you do. You may feel anger, frustration or worry. It is usually good to talk to those you trust and with others in your situation. There are ways of getting in touch with others in your situation through local groups or the internet. Please click the the tab 'useful resources and links' on this page in the main menu for further information.
- What causes MCI?Back up
There are many different reasons why people start to get MCI. Often it can be difficult to find an underlying cause. Your doctor may or may not be able to find the underlying cause/s. If an underlying cause is found then the right treatment will be prescribed.
- Will I get better?Back up
It is important to note that 40% of people who receive a diagnosis of MCI will return to a level of functioning that is normal for their age. So there is hope for improvement in your functioning.
Having a diagnosis of MCI means that you have a higher risk of getting dementia in the future.
Only around 1 in 10 people with MCI will develop dementia.
Only around a third of people with MCI will progress to dementia in the 10 years following diagnosis.Due to the higher risk of developing dementia, it is important that you take actions to reduce this risk.
- How is MCI treated?Back up
There are currently no drugs that have been approved for treating MCI. Alzheimer's drugs have shown no clear advantage to MCI patients.
MCI is more likely to progress to dementia if the person has a poorly controlled heart condition or diabetes, or a higher risk of strokes. Therefore, treatment for MCI may include medicine for a heart condition, to reduce high blood pressure, prevent clots or lower cholesterol.
Exercise, a healthy diet, reducing how much alcohol you drink and stopping smoking may be prescribed.
Social prescription of keeping physically, mentally and socially active may also be given.
If depression is diagnosed this should be treated with medication, Talking Therapies or both.
- What actions can I take?Back upWhat actions can you take to potentially improve functioning and reduce the risk of getting dementia?
Listed here are10 areas of your life where you can make changes:
1. DO SOME EXERCISE
Improving physical fitness contributes to cognitive ability, physical strength, balance, better mood and energy levels. If you already regularly exercise it is important to maintain this.
Some suggestions could be:
- Take up a physical activity: jogging, walking, swimming, martial art, dancing, or a competitive sport (for example, bowling, football, badminton)
- Regularly go to the gym
- Find out information about local activities from the local paper, internet or free locally delivered flyers and magazines.
2. HAVE A HEALTHY LIFESTYLE
Smoking, alcohol consumption and inactivity are linked to dementia.
3. BOOST YOUR BRAIN POWER
Cognitive training can improve cognitive functioning. This can be through doing crosswords, Sudoku, other puzzles or quizzes, or through online training.
4. HAVE A POSITIVE ATTITUDE
Adopting a positive or optimistic attitude can be a protective factor against depression and heart disease, and can have a positive effect on the immune system.
5. SOCIALISE MORE
Having an active social life can contribute to cognitive functioning, and help you feel less isolated and more engaged with the world around you.
Some suggestions include connecting with friends and family or joining a new social group.
6. HAVE A SENSE OF PURPOSE IN LIFE
Having a sense of purpose and meaning in life is a vital part of maintaining health and wellbeing.
Some suggestions include:
- Seeking out opportunities to help others
- Maintaining your existing interests
- Developing new interests
- Take a look at your local library notice board to see what is going on
7. LEARN SOMETHING NEW
Learning is linked with recovery and some people find mindfulness or meditating to be beneficial.
8. USE STRATEGIES TO AID MEMORY AND LEARNING
It is much better to use the aids than struggle in coping - everyone uses aids of some sort!
Some suggestions include:
- Use calendars or a diary to record events and appointments
- Follow a set routine, for example, have night time medication next to your bedside lamp and take before switching off or put morning meds next to the breakfast cereal
- Use to-do lists and cross off a job when completed
- Put your wallet or purse, keys, phone and glasses in the same place each day
- Carry round a pocket sized notebook to record things that you want to remember
- Decide on a special place to keep important items such as keys, or glasses - make sure you put them back in the same place after using them, so you always know where to find them
- Use a pill box or weekly dispenser for tablets - these can be requested free of charge via your GP
- Keep a diary
- Write down things you need as you think of them, for example shopping lists
- Use a white board to leave reminders to yourself or family members
- Keep a file of all the people you know, their addresses and phone numbers
- Use alarms (clocks, timers, mobile phone) as prompts, for example, to take food out of the oven, go to an appointment or to take medications
- Use a digital recorder to record something as you remember it
9. CHECK YOUR OWN MOOD LEVEL
Use assessments to see if you need to seek treatment for depression. Contact the Memory Assessment Service for more information: 03000 274949.
10. HAVE A HEALTHY DIET
A healthy diet can help reduce the risk of many chronic diseases, such as heart disease, diabetes and dementia.
In general, a healthy diet consists of 5 portions of fruits, leaves and vegetables per day, whole grains, berries/beans/pulses/nuts, unprocessed meat, fish (including oily fish), and poultry.
You should cut out high sugar products and limit intake of products with added sugar and salt. Use rapeseed oil or olive oil for cooking.
For links to useful websites and resources please visit the 'useful links and resources' tab on this website page.
- What should I do if my functioning is getting worse?Back up
You may feel that your memory, attention, concentration, problem solving abilities, language, or visual ability is getting worse. You may notice a change in your ability to do everyday tasks such as cooking, shopping, household chores - doing the things that you normally do.
If this is the case it is helpful to check with family or friends to get their view.
If you feel that your functioning is getting worse then speak to your GP who may refer you back to the Memory Assessment Clinic for assessment.
- Can I still drive if I have MCI?Back up
MCI will not normally prevent you from driving. If your driving is not affected then you do not have to inform the DVLA.
However, MCI symptoms may affect driving. The assessment that has been undertaken may identify issues related to driving ability. You will be advised if you should notify the DVLA.
You will not automatically be prevented from driving. Driving ability assessments may be carried out.
To notify the DVLA complete the form on the back of your driving licence or write a letter to the DVLA to explain, giving your driving licence number, name and address to Drivers Medical Group, DVLA, Swansea, SA99 1TU.
If you are advised to inform the DVLA and you do not do this then you can be fined up to £1000.
Mental health, learning disability and autism services
- Acute Liaison Mental Health Service
- Adult ADHD, Autism and Tourettes Team (AAATT)
- Adult Inpatients Acute
- Adult Inpatient Specialist
- Adult Inpatient PICU
- At Risk Mental State Service
- Community Mental Health Adult - Early Intervention NSTEP
- Complex PTSD service
- Community mental health team
- Crisis cafés
- Crisis Houses: The Warren and The Martins
- Crisis Response Unit
- Eating Disorders Service
- ECT and Ketamine Therapy - The Treatment Centre
- Forensic Team
- Health Based Place of Safety
- IPS Employment Service
- Learning Disabilities
- Liaison Psychiatry for Older People
- Maternal Loss Psychology Service
- Memory Assessment Service
- The Mental Health Number
- Northants Personality Disorder Hub
- NHS Northamptonshire Talking Therapies
- Older Adults Community Mental Health Services
- Older People’s Inpatient Acute
- Peer support service
- Police Liaison and Triage
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Recovery College
- Specialist Perinatal Mental Health Service
- Urgent Care and Assessment Team
- Younger Persons with Dementia Team
- Planned Care and Recovery Treatment Service